my test results
It's Time to Start to find the why!
If it was not for my self diagnosis and extensive testing and constantly asking myself WHY, I would never have known I suffer from Pre-Parkinson’s. Only when motor issues manifested themselves would I have known I suffer from this debilitating disease. Fortunately, God has given me the opportunity to make a difference and change the direction of this disease for myself and others around the world.
- Diagnoised with iRBD (11/2019)
- Gut Dysbiosis (1/2020)
- Low Butyrate (2/2020)
- High Levels of Chemical Toxins (1/2020)
- High mycotoxins (1/2020)
- Elevated glyphosate (1/2020)
- SCFA – Low Butyrate (4/2020)
- White Blood cell Count (2017 – 2020)
Toxic Chemical Test
NAPR (3X’s upper limit) neurotoxin 139, HEMA (90th percentile), DEP (90th percentile), PGO (80th percentile), 2HIB (77th percentile),
Mold Test
Aspergillus (Ochratoxin A) 11.96
Penicillium (mycophenolic acid) 43.61
Organic Acids Test
3-Hydroxyglutaric (22) 5X’s greater, Furan - 2, 5 - Dicarboxylic 5X’s greater, 5-Hydroxymethyl - 2 furoic (73) 4X’s greater, Tataric 3X’s greater, Arabinose 3X’s greater, Hippuric (1190) 5X’s greater, HPHPA high, HVA high, HVA/VMA ratio high, DOPAC high, DHPPA high,
Glyphosate Test
45% percentile - 1.035 (ug/g)
Biohm Gut Sequencing
Mercury Blood Level Test
Appears to be normal
Complete Stool Analysis / Parasitology x 2
Low Butyrate & Low Total Short Chain Fatty Acids
Sun Genomic Gut Sequence
Omega 3 & 6 Fatty Acids
American Gut Project Sequence
Sleep Study - Keck Medical Center of USC
My Journal
My Profile
From my profile, my symptoms and continuing test results, and the collaboration of the global community we will identify the root cause and a therapy for our disease.
- Male
- Age 56
- Height 5'10"
- Weight 150 lbs
- Exercise - Ultra distance endurance runner
- Feeding - time restricted feeding and intermittent fasting
- Diet - Heavy on plants, salmon, sardines, small amounts grass feed meat, yogurt probiotics, butter
- Vitamins and Supplements: Vit A 3000 mcg Vit B100 Vit B12 5000 mcg Vit C 2-4 g Vit D3 5000 Vit K2 90 mcg Zinc 50 mg CoQ10 200 mg Boron 9 mg
- Personal Care Products - Self made with all natural ingredients
- Dental - amalgam fillings x 3+, root canals x2
- Hydration - RO / mineralized past 5+ years / 3-4 liters daily
- Vitamin D levels above 70
- Complete blood test - 10 years
Recap of symptoms
The following is a recap of events as I have been able to identify over the past 12 months since confirming I suffer from iRBD. Many of them may or many not be related but I feel could be significant in identifying Pre-PD in the early stages.
- Recollection of first actions Fall 2018 / Spring 2019. Possibly dating back to 2016 / 2017 as I do possibly recall jumping out of bed in 2017
- Self diagnosed in August of 2019 - after researching my nightly actions and while studying the benefits of sleep, I informed my primary care doctor I suffered from iRBD
- Officially diagnosed in November of 2019 (attached)
- Suffer from both vocal and physical dream enactment Yelling and shouting verbally Hitting, punching and even leg motion as if I was riding a bike (non-violent & violent) Have thrown myself out of bed Events between 2am & 6am
- I have been logging events and have seen some possible connection / pattern with events and high carb / high lectin consumption meals prior to the sleep event.
- The following are the most concerning to me…
- Skin - thinning 2018 - susceptible to hemotomas and skin tears
- Loss of body odor 2017 - Contributed the fact to the use of all natural soap I started making and my “meatless” diet. I can go days without shower even after running 10 - 15 miles and 30-45 min in a sauna. Current research shows LOW BUTYRATE as the cause
- Constipation - movements are most always during running. Movements during running started summer 2018. If not running no movement.
- Flatulance - starting 2/2020 - 3/2020 smell appears to have reduce or gone away. Wife no longer notices when I pass gas
- Fall - First hard fall because of left toe catching on side walk while running injuring right shoulder - January 2018
- Pain Left Leg - noticed pain in left leg when trail running and experiences dorsiflexion on the down hill. Pain could hit 6-7 (debilitating where I had to stop and wait for it to subside). Sought help of orthopedic and they saw nothing on the xray. It was also the left foot I have experienced toe drop while running
- Contractions in legs - suffer from debilitating contractions in both legs that can last up to 10-15 seconds and then subside. Have tried treat with magnesium with some success. Have attributed to running, but never suffer from cramping nor fatigue. 80% of my training is in Zone 2 where I have no issues the following day
- Softer Voice - Wife complaining for voice becoming more soft spoken - 2019
- SIBO - possible case, have lower baby belly, discomfort, and appears to be connected to my dietary intake from the day before. After implementing restricted diet (low lectin and addition of meat) appears to have dissipated.
- Lactic Acid - do not appear to have any build up day after a run as long as I keep it below 130 hbm. Not sure is a result of heart rate or low butyrate. I do take 1 tablespoon of ginger powder. This is supposed to help in recover.
- Abdomin motility - hyperactive After restrictive diet, appears to have dissipated (8/2020)
- Could possibly be suffering from hyposmia
- Could be suffering from orthostatic hypotension (currently suffering from light headedness when I stand up - have related to low heart rate from long distance running - on a normal day the lowest heart rate I record is around 38)